Resources
Plain-English guides for individuals and families navigating rare and chronic illnesses — 504 plans, disability benefits, and trusted rare-disease organizations. Educational information only; not medical or legal advice.
504 Plan Request Letter (Fillable Template)
A printable template letter to formally request a 504 plan evaluation from your child's school. Fill in the blanks, print, sign, and deliver it.
504 Plan Paperwork Guide
What a 504 plan is, who qualifies, how to request an evaluation in writing, and what the school must do — in plain English.
SSDI/SSI Disability Application Checklist
A printable checklist of documents, records, and steps for applying for Social Security Disability (SSDI/SSI) — with checkboxes you can tick off as you go.
Applying for Disability Benefits (SSDI/SSI)
The difference between SSDI and SSI, how to apply, what records to gather, and what happens after you apply — in plain English.
EveryLife Foundation for Rare Diseases
Policy advocacy and patient programs advancing treatments for rare diseases.
GARD — Genetic and Rare Diseases Information Center
Free expert answers on rare and genetic conditions from the National Institutes of Health.
Global Genes
Rare-disease patient advocacy, toolkits, and events for patients, caregivers, and advocates worldwide.
Medical Records Request Letter (Template)
A printable template letter to request copies of your (or your child's) medical records from a doctor, hospital, or clinic — your right under HIPAA.
NORD — National Organization for Rare Disorders
Rare-disease database, patient assistance programs, and advocacy from the leading U.S. rare-disease nonprofit.