GARD — Genetic and Rare Diseases Information Center
From Unveiling Unicorns — educational information only.
What Is GARD?
The Genetic and Rare Diseases Information Center (GARD) is a program of the National Center for Advancing Translational Sciences (NCATS) at the National Institutes of Health (NIH). It provides free, expert information about rare and genetic conditions.
What GARD Offers
- Ask a question — submit questions about a rare or genetic condition and receive a personalized response from GARD information specialists
- Disease pages — summaries of thousands of rare conditions, including symptoms, causes, and research resources
- Finding specialists — guidance on locating doctors and clinics with rare-disease expertise
- Clinical trials information — how to find and understand research studies
When to Use GARD
- You have questions about a rare diagnosis that your doctors couldn't fully answer
- You need help finding a specialist for an ultra-rare condition
- You want NIH-vetted information about symptoms, inheritance, or ongoing research
Official Link
- rarediseases.info.nih.gov — Genetic and Rare Diseases Information Center (NIH)
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Unveiling Unicorns is a 501(c)(3) nonprofit organization focused on raising awareness and providing resources for rare and chronic illnesses.